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How to Establish a Palliative Care Program

Form Review Workgroup

Institutionalizing change in the care of patients with progressive, incurable illness will remain a goal beyond establishing a palliative care program. Some would argue that maintenance requires a different set of skills from getting a program started.
  • Revise the strategic plan regularly business planning to increase the likelihood of program sustainability
  • Market to increase timely referrals of appropriate patients
  • Develop education and quality improvement efforts to improve palliative care provided by all providers in the institution, not just the program
  • Diversify sources of funding clinical services, philanthropy, foundations, industry, and endowments.
  • Demonstrate credibility within the institution. Go to clinical conferences and participate. Participate in institutional committees. Present at grand rounds and the regular lectures series. Show you are a team player and not just committed to your own program. Hire full-time, dedicated staff. Seek firm place in the administrative structure rather than as an autonomous program.
  • Maintain close contact with administrative leadership to promote ongoing commitment.
  • Use marketing, communications, publicity services at the hospital.
  • Sponsor your own regularly scheduled continuing education series for both your staff and the institution.
  • Sponsor a palliative care program newsletter
  • Develop a presence on the institutions' web site.
  • Develop information brochures about the program and place them in patient information racks in the institution
  • Present quarterly reports to leadership
  • Track financial data
  • Make quality improvement a priority
  • Collect outcomes data to document effectiveness.

CAPC Resources:
Additional resources on leadership  

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Help develop CAPCManual. Send your comments, questions, suggestions to: fferris@sdhospice.org
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CAPCManual Attribution:  von Gunten CF, Ferris FD, Portenoy RK, Glajchen M, eds. CAPCManual: How to Establish A Palliative Care Program. New York, NY: Center to Advance Palliative Care, 2001.   © Center for Palliative Studies, San Diego Hospice & Palliative Care, San Diego, CA and
The Department of Pain Medicine and Palliative Care, Beth Israel Medical Center, New York, NY, 2001

Permission to reproduce for non-commercial educational purposes with display of attribution and copyright is granted.
Last updated: February 20, 2002

Development
Select section:
Change, Groups, Phase 1, 2, 3, 4

•  Change
      In Individuals
      In Organizations
         Stages of Change
            Awareness
            Adoption
            Implementation
            Institutionalization
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•  Small Group Structure / Function
      Leadership
      Group Formation
      Group Function
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•  Phase 1: Prepare to Plan
      Potential of Planning Process
         How Much is Enough?
         Ensuring Impact
      Form Initial Workgroup
      Elaborate Initial Idea
         Stakeholders, Customers
         Need, Purpose of Program
         Planning Questions
         Planning Steps, Timeline
         Resources Needed to Plan
            Use of Consultants
            Use of Retreats
      Write Planning Proposal
      Selling, Getting Approval
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•  Phase 2: Plan the Program
      Form Planning Workgroup
      Review, Revise Process
      Strategic Planning
         What is Strategic Planning?
            Models
            Steps
            How Much is Enough?
            Resources
         Review Stakeholders, Customers
         Conduct Needs Assessment
            Company
            Competition
            Customers
            Conduct SWOT Analysis
            Case Study - United Hospital Fund
         Define the Program
            Purpose, Values
            Mission, Vision
               Mission
               Vision
            Service Delivery Model
            Goals, Objectives
            Strategies, Tactics
            Strategic Decision Points
      Business Planning
         Case Examples:
            Cleveland Clinic
            University of Virginia
         Organizational Structure, Leadership
         Financial Plan
         Implementation Plan
            Human Resources
            Physical Resources
            Informational Resources
            Community Resources
            Operations
            Evaluation
         Marketing Plan
         Targets, Timing
      Write Proposal
         Suggested Proposal Outline
      Sell Plan
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•  Phase 3: Implement the Program
      Staff Recruitment
         Staff Training
         High Functioning Team
      Standards of Practice, Policies, Procedures
      Clinical Evaluation
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•  Phase 4: Review Program, Revise Plan
      Form Review Workgroup
      Program Evaluation
         Plan Evaluation
            Continuous Quality Improvement
         Utilization Review
            Appropriateness of Hospitalization
            Documentation
               Pearls
            Respond to Denials
      Revise Plan, Further Development
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