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How to Establish a Palliative Care Program

Palliative Care

Until a US National Consensus can be reached, CAPCManual proposes that the following definition of palliative care be used to guide palliative care program development:

Brief Definition (8 second sound byte):
Palliative Care aims to relieve suffering and improve the quality of living and dying.

Elaborated Definition:
Palliative Care is appropriate for any patient and/or family living with, or at risk of developing a life-threatening illness

  • due to any diagnosis
  • with any prognosis
  • regardless of age
  • at any time they have unmet expectations and/or needs, and are prepared to accept care
It aims to address:
  • physical, psychological, social, spiritual and practical expectations and needs
  • loss, grief and bereavement
  • preparation for, and management of, self-determined life closure, the dying process, and death

It is most effectively delivered by an interdisciplinary team.

It may complement and enhance disease-modifying therapy, or it may become the total focus of care (see Applicability of Palliative Care).

It may also be applicable to patients and families experiencing acute illness and/or chronic illness.

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Help develop CAPCManual. Send your comments, questions, suggestions to: fferris@sdhospice.org
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CAPCManual Attribution:  von Gunten CF, Ferris FD, Portenoy RK, Glajchen M, eds. CAPCManual: How to Establish A Palliative Care Program. New York, NY: Center to Advance Palliative Care, 2001.   © Center for Palliative Studies, San Diego Hospice & Palliative Care, San Diego, CA and
The Department of Pain Medicine and Palliative Care, Beth Israel Medical Center, New York, NY, 2001

Permission to reproduce for non-commercial educational purposes with display of attribution and copyright is granted.
Last updated: February 20, 2002

Lexicon
Select alphabetic range:
A-B, C-D, E-I, J-O, P-Q, R-S, T-Z

A - B
Accountability
Activities of Daily Living
Advance Directives
Alternative, Complementary, Integrative Therapies
Assess
Assisted Living
Baseline
Benchmarking
Bereavement
Bottom-up Planning
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C - D
Care
Caregiver
Care Plan
Change
Core Competencies
Critical issues
Critical Success Factors
Custodial Care
Customer
Customer Delight
Customer Satisfaction
Discrimination / Prejudice
Domain
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E - I
Effectiveness
Efficiency
Essential Services
Essential Step
Existential Questions
Expectations
Family
Goal
Grief
Group Home
Hospice
Illness
Indices
Interdisciplinary Team
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J - O
Life Closure
Mission
Needs
Norms
Nursing Home
Objective
Outcome
Outcome Measure
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P - Q
Pain
Palliative Care
Patient
Performance Gap
Performance Indicator
Performance Measure
Performance Measurement
Plan of Care
Policy
Preferred Practice Guideline
Principle
Procedure
Process
Program
Provider
Proxy
Quality Care
Quality of Life
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R - S
Rehabilitation
Respite Care
Risk
Service
Setting of Care
Situational Analysis
Skilled Care
Spirituality
Stakeholder
Standard
Strategic Planning
Strategies
Strategy
Subacute Care
Suffering
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T - Z
Tactical / Action Planning
Top-down Planning
Total Pain
Transcendental Questions
Unit of Care
Values
Vision
Volunteer
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