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How to Establish a Palliative Care Program

Developing, Implementing, Evaluating Policies and Procedures

Policies and Procedures are developed by each program. They cannot be imported wholesale. Although another source may be used to get a get a head-start, they always must be tailored to the individual program.

Development
The first step in developing policies and procedures is to define issues relevant to the provision of palliative care, including: goals and objectives of the palliative care program, components of clinical care, care processes, roles and responsibilities of staff, and existing regulations, standards and guidelines important to palliative care. As policies and procedures will direct the activities of diverse providers, it is best to have a multidisciplinary team involved in defining issues and drafting documents.

To develop procedures, evaluate the functions and tasks needed to make these processes effective and determine appropriate roles of staff members. A procedure assigns, prioritizes, and orders responsibilities. "For example, who does what part of the assessment, where is it recorded, what should be done with the information collected, or who is authorized to decide what to do next?".

The following general areas are included in the Policy and Procedure Manual:

Departmental: Address administrative issues. Most palliative care programs will be incorporated into an existing department with established administrative policies and procedures. Many of these policies may be institution-wide and can be incorporated into the program's manual.

Patient Care: Policy statements can be written for functioning and patient eligibility for clinical services, provider roles and responsibilities (i.e., on-call procedure), types and administration of medications (i.e., continuous subcutaneous opioid infusion, opioid use in nonmalignant pain, application of Fentanyl transdermal patches), other treatments (i.e., conscious sedation, artificial nutrition/hydration) and end of life care.

Educational: Policies can clearly outline the palliative care program's education program, including core competency requirements and orientation for new staff and volunteers. Policies may also be needed for resident rotations, fellowship programs or observer programs.

Research: Research procedures may include issues such as: IRB applications, conducting drug studies, completing consent forms, guidelines for reporting adverse reactions, data entry, federal regulations, and others.

After the content has been identified, the members of the interdisciplinary team begin to draft the policy and procedure documents. Contributors can anticipate how policies and procedures will impact on daily clinical practice. They will assess whether policies and procedures will make it easier and faster to provide consistent, high quality care.

It is valuable to have documents reviewed by the interdisciplinary group. Optimally this is the team that will be involved in implementation. This group can also be the group who will oversee the program.

Generally, institutions have a standard format or style to be used when drafting new policies and procedures. Completed policies and procedures may require review and approval by the institution.

Implement policies and procedures
Training sessions to introduce staff to policies and procedures and reinforce their importance can be incorporated into the new employee training for palliative care program staff. For some policies and procedures, training may require specialized in-services (e.g., for policies and procedures regarding continuous subcutaneous opioid infusion).

Evaluate the effectiveness of policies and procedures
The effectiveness of polices and procedures can be evaluated using a CQI model. Evaluation activities should begin prior to implementation to serve as a basis for comparison after implementation. Process measures can be collected during implementation to ensure that policies and procedures are being followed as intended. Also, outcomes measures should be collected to find out whether desired outcomes are achieved when policies and procedures are followed. Findings can be used to provide feedback to staff members and make modifications, if necessary.

As the palliative care program grows, additional policies and procedures may be needed for expanding clinical services, adopting new treatments and therapies, or for implementing new regulations.

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Help develop CAPCManual. Send your comments, questions, suggestions to: fferris@sdhospice.org
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CAPCManual Attribution:  von Gunten CF, Ferris FD, Portenoy RK, Glajchen M, eds. CAPCManual: How to Establish A Palliative Care Program. New York, NY: Center to Advance Palliative Care, 2001.   © Center for Palliative Studies, San Diego Hospice & Palliative Care, San Diego, CA and
The Department of Pain Medicine and Palliative Care, Beth Israel Medical Center, New York, NY, 2001

Permission to reproduce for non-commercial educational purposes with display of attribution and copyright is granted.
Last updated: February 20, 2002

Elements
Select section:
Basis, Context, Components, Case Examples

•  Basis of Palliative Care Practice
      Palliative Care Definitions
         Historical Definitions
            WHO
            Oxford Textbook
            ABHPM
            NHPCO
         Palliative Care
         Applicability
         Application to Patients at Risk
         Differences–Hospice & Palliative Care
      Values, Ethical Principles
         Values
         Ethical Principles
      Conceptual Framework
         Square of Care
         Square of Organization
         Square of Care & Organization
      Norms / Standards of Practice
      Guidelines
      Policies, Procedures
         What are They?
         Developing, Implementing, Evaluating
      Measures
      Definitions of Common Terms
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•  Context
      Tensions
         In Therapeutic Relationships
         Within Host Organizations
         Within Healthcare System, Community
      Who's the Customer
      US Healthcare
         Acute Care Hospitals
         Long-term Care Facilities
         Home
         Hospice Care
      Financing US Healthcare
         Expenditures for EOL Care
         Overview by Settings, Revenue Sources
            Medicare
            Medicaid
            Commercial Insurers
            Managed Care
            Government (VA, Military)
         Financing
            Community Hospitals
            Academic Hospitals
            Subacute, Skilled Care
            Custodial Care
            Ambulatory Care
            Home Care
            Hospice Care
                  Eligibility
                  Covered Services
                  Reimbursement Rates
                  Unintended Consequences
         Financing Physicians
            Coding
               Procedure / Service Codes
                  Coding Based on Time
                     Frequently Used E/M Codes
                        Example
                  Addition of Procedure Codes
            Diagnosis Codes
               ICD-9 Codes for Palliative Care
               Avoiding Concurrent Billing Problems
                  Example
            Documentation
               Example
            Physician Reimbursement
               Medicare
                  Medicare Hospice Benefit
                     Non-hospice Physicians
                     Associated with a Hospice
               Medicaid
               Commercial Insurers
               Managed Care
               Government (VA, Military)
         Financing Non-physician Providers
      Hospital–Hospice Relationships
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•  Program Components
      1º, 2º, 3º Model of Palliative Care Delivery
      Interdisciplinary Care
         Members of Interdisciplinary Team
            Core Competencies
               Physician
               Nurse
               Social Worker
               Chaplain
               Volunteer
      Specialized Environments
      Types of Services
         Consultation Services
            Consultation Etiquette
            Consultation Documentation
               Sample Note
         Inpatient Units
            Developing an Inpatient Unit
               Staffing
               Acuity
               Nursing Model
               Unit Size
                  General Ward vs. Palliative Care Unit
            Roles
            Decisions
            Case Example
               Nursing Staff
               Physician Staff
               Other Staff
               Advice
         Home Care
            Eligibility, Medicare Home Health Benefit
               Covered Services
               Usually Not Covered
         Hospice Care at Home
         Ambulatory Outpatient Care
         Respite Care
      Financing Palliative Care Programs
         Acute Hospital
         Skilled Care Nursing Home
         Hospice
         Home Health
         Ambulatory Outpatient
         Managed Care
      Financing Physicians in Palliative Care
      Financing Non-physicians in Palliative Care
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•  Case Examples
      CAPCManual Case Examples
      Pioneer Program Case Examples
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