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How to Establish a Palliative Care Program

Overview of CAPCManual

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Program Development
Programs develop in a variety of ways. With a 4-step approach to planning, and an understanding of the process of change and group formation and function, you will maximize your chances to implement your new program, and minimize delays or missteps:

Collaboration with a hospice program from the earliest stages of planning will be helpful.

The strategic planning process tarts with establishing the mission and vision for the new palliative care program.

The needs of the host organization, the program's likely customers, and the possible competitors and collaborators are considered as part of a needs assessment. This information will justify the need for the program to administrative leaders. The information collected during this process can also be used to evaluate the success of the program.

A strategic plan will describe the design of the program and how it will meet the needs of the overall organization in which it will operate. It will indicate specific goals and objectives that the program will achieve as well as the strategies and tactics that will be used to achieve them. The plan will be used to gather support and permission for the program.

The business plan will describe how the program will operate and how it will be financed. Successful palliative care programs have a broad view of their customers and use multiple revenue streams to support their activities.

Standards of practice and policies and procedures will be developed to guide the implementation and operation of the new palliative care program. A number of norms of practice exist to guide these processes.

A process of ongoing evaluation and review will guide modifications to the program and the development plan as it becomes established.

Program Elements
Although palliative care programs develop uniquely in each setting, they are composed of a variety of elements that are common.

Consultation services see patients and their families anywhere in the hospital or health care system. They are variably comprised of physicians, nurses, social workers, chaplains and others who make up the interdisciplinary consult team. They provide information to the primary team looking after the patient and manage portions or all of the care when asked. Where possible, they are developed in collaboration with hospice programs.

Inpatient units care for patients for whom palliative care needs are complex and who require highly trained staff. These may be geographically based in hospitals or in "scatter" beds in the institution. Sometimes they are developed jointly or are contractually managed by a hospice program.

Care for patients at home may be provided through ambulatory outpatient clinics, home care agencies, hospice programs, or by home visits from physicians and others.

These elements are financed through existing healthcare funding mechanisms. In order to develop a strategy for financing a new palliative care program, it can be helpful to have a general understanding of how healthcare is financed. Then, specific ways that this system can be used to finance a palliative care program in an individual hospital can be developed.

Rationale for Palliative Care Programs
Palliative care programs develop in hospitals and health systems because of unmet opportunities for care. Patients with life-threatening illnesses and their families have a variety of expectations and needs for care that are increasing in incidence and prevalence as modern medicine is successful fighting disease. Once these multiple issues are conceptualized, and a plan is developed to manage them, it becomes clear how a palliative care program can effectively work in conjunction with the hospital, health care system and existing hospice organizations to care for these patients and their families.

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CAPCManual Attribution:  von Gunten CF, Ferris FD, Portenoy RK, Glajchen M, eds. CAPCManual: How to Establish A Palliative Care Program. New York, NY: Center to Advance Palliative Care, 2001.   © Center for Palliative Studies, San Diego Hospice & Palliative Care, San Diego, CA and
The Department of Pain Medicine and Palliative Care, Beth Israel Medical Center, New York, NY, 2001

Permission to reproduce for non-commercial educational purposes with display of attribution and copyright is granted.
Last updated: February 20, 2002

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